Meet Jonathan, another Jellyfish!

 "My son had a liver transplant at 9 months old - he is now 7. Over the Christmas holidays he was hospitalized with an episode of rejection - the first in several years. Well it's been one thing after another for him and while he's not currently in the hospital, he is currently in isolation and home-bound, unable to attend school.


He also has asthma which has flared several times so far this year and each time it does they put him on steroids which weakens his already weak immune system. 


It's been a tough year so far, being pulled from the every day of school &friends to being home-bound. I think it's wonderful that you do this for kids - our church friends brought Jonathan things to keep him busy while we were in the hospital last time and it sure made him feel better. It's amazing what simple things can brighten someone's day!"


Please send all cards to 
Jellyfish Wishes
P.O. Box 263 
Germantown, Ohio 45327

Meet our Jellyfish, Nilanyi

"She has a complex dx including, a brain tumor - Cervico Medullary Astrocytoma, Angelman's syndrome, Becker's muscular dystrophy, GI issues (they'd love to do a feeding tube but due to low immune deficiencies they've continuously stalled to do due to complications with impetigo and MRSA) epilepsy (that they've had a hard time controlling) GERD, hearing and vision impairments, and esinphilial esophogitis, and a strong  belief of a mitochondrial disorder (this list is vague, I hope I've not forgotten anything). She has monthly MRI's, labs, CT Scans, therapies, and is waiting inpatient programming at our local CHOP's SeaShore house. We have a MR Spectromoty every 6 months. Her latest tests show that her CSF and ICP need immediate attention beyond the help of a shunt, and they've talked about a hemi craniectemy hopefully scheduled this April/June. We just had a hospital stay where my daughter had a Grand Mal seizure, and the hospital couldn't get under control for 4 days. Our nurses know us by first name :o)"


Nilanyi is 4 years old & it is very obvious this little girl has been through so much! She would LOVE to know she is being prayed for & thought about. Please send all her feel better & happy cards to 
Jellyfish Wishes
P.O. Box 263
Germantown, Ohio 45327

RAISING AWARENESS "Mito" disease

We are happy to help raise awareness in any way that we can.  This time, it is regarding a 
disease known as Mito. Diseases of the mitochondria appear to cause the most damage to 
cells of the brain, heart, liver, skeletal muscles, kidney and the endocrine and respiratory 
systems.




Depending on which cells are affected, symptoms may include loss of motor control, muscle 

weakness and pain, gastro-intestinal disorders and swallowing difficulties, poor growth, cardiac

disease, liver disease, diabetes, respiratory complications, seizures, visual/hearing problems, 

lactic acidosis, developmental delays and susceptibility to infection.

informative site (click link)

Here is the link to a video shared by one of Jellyfish Mama's. Please take the time to watch & spread awareness! I have never heard of Mito until some of these Mother's brought it to my attention. So happy to spread the world. Prayers to all of you! Love ya!
Mitochondrial Disease <3


If you would like more information, check out this page! https://www.facebook.com/PeytonsPromiseofHope

Adding another Jellyfish..Cooper Ellington!!!

Send all cards to :: 

Jellyfish Wishes

P.O. Box 263

Germantown, Ohio 45327

Cooper is 12 years old, and had to have surgery to remove a tumor from his brain.  Aubrey is very happy to be collecting cards & prayers for Cooper and his family! Thank you for all of your support! Read his story below!

On august 24, 2011, one of God's smallest 

soldiers began the fight of his young life.

Just one day prior, he was suited up, head to

 toe, helmet to cleats, on the football field

 with his teammates. Doing what normal kids 

do.....

But to say he is normal is not exactly correct.

 He is extraordinary! He excels in basketball, 

football, and this past July, pitched a no 

hitter in the championship baseball tournament.

 He is a loving son and grandson, a hugh Colts 

fan, and he loves tar heel basketball. I think 

he plays every sport believing that at least 

one of them will make him a TAR HEEL one day. A

 curious and funny kid, who is always the 

subject of his paw paws funny stories.

Today, life is a little tougher for Cooper. 

After a trip to the hospital the night of 

August 24th 2011 for a severe headache, he was

 rushed Duke medical center and on August 25th 

he underwent what would end up being a 12 hour

 surgery to remove a tumor from his brain stem.

Cooper's mom Stephanie is a Legal Assistant and has been recovering from her own brain surgery for the past 6 weeks. She now spends her days and night cheering Cooper on hoping for a breakthrough.

Cooper's dad Reid is a North Carolina State Highway Patrol Trooper. He has a pretty heavy load taking care of the citizens of North Carolina and his family - I think the weight of the world is on his shoulders right now. 

Cooper continues to fight with the strength and determination that makes him a great athlete, but progress is slow.

"We believe in the in the healing power of prayer, and strength in numbers. He needs your help. "

Introducing Tripp Roth as our new Jellyfish!

We are back in action, and so very ready to get these cards flowing in! Little boy, Tripp Roth, is our new Jellyfish! We are so very happy to share his story of strength! 

Tripp at birth.

           Tripp now. Such a fighter!


"Tripp was born on May 14, 2009. He was diagnosed with a rare genetic skin disease called "EB." Any type of friction on his skin or mucous membranes causes blisters. They told us he would not live to be a year old. Every day he amazes us by his strength. He is a fighter and with all he has been through, he has never given up. He is the strongest person I know. Tripp wakes up each morning with a smile on his face. Every day spent with him is a blessing. God has a special plan for him. I'm just blessed to be able to witness that plan."


Normally, a little paragraph is all we use here at Jellyfish Wishes to get the basics of what is going on.. but in the handsome little Tripp's case, I am leaving this link below.  It will take you to the blog of his super strong Mommy.  If you just scroll down, you will see picture of him from birth til now, and a few extra paragraphs about his story. It will open your eyes, make you hug your children a little tighter, & will put you on your praying knees for Courtney (Mama) & Tripp as well as everyone helping care for him, and every child born with EB! 
http://randycourtneytripproth.blogspot.com/p/tripps-story.html



*IMPORTANT EXTRA INFO*


We are ALSO collecting any home made ornaments for Tripp's tree in addition to cards for both him as well as his Mom!  As you have read in Courtney's blog, Tripp cannot see, but he loves music!  You may write encouraging things to the family, and YES, they are accepting prayers! Please send to the P.O. Box below as of 11/5/2011 our collecting period has begun for Tripp! Let's show all of our love and support and share the love of Jesus in doing so!

Jellyfish Wishes
P.O. Box 263
Germantown, Ohio 45327

*NEW* Jellyfish FAMILY! 9/9/11

We are currently collecting cards for all the upcoming Jellyfish we will be posting after our move, so we are taking cards without names on them. However, we've met some great people through our Facebook page, and we felt the need to help out a family that lost everything due to flooding. Meet Caylyn!

From her Mom..
"Hello my name is Caylyn Rose. I am 23 months old and newly diagnosed with Autism Spectrum Disorder, Cerebral Palsy and Auditory and sensory processing disorder. I am 1 big miracle to my parents.  Doctors told my mommy and daddy I am lucky to be here. When I was born I had no oxygen to my brain and I had 2 knots in my cord. God had a plan for me. 


My favorite color is pink, Spongebob and Elmo are my best friend's and my parents are my world. I love playing with my Frog his name is Ribbit . My family and I have been going through A LOT lately with my new diagnoses and we had Hurricane Lee dump a lot of rain here. Mommy and Daddy said our home is a total loss and all my toy's and clothes are gone. But mommy and Daddy say it can all be replaced . I am just glad we are safe. I love to coo and laugh i am always smiling and always happy. I am mommy and daddy's whole world !!

Hello Caylyn's mommy here a little about our situation Hurricane Lee has dumped alot of rain here we had a second to leave our home and we had to fight thru flooded waters to get to safety. Our home is a total loss and we have lost everything we owned. We were asked if we wanted to have Caylyn the Jelly Fish of the week and i just knew it would help put a smile on her face. Our little girl has been throu so much . And getting card's would make her so happy and would bring back her beautiful smile."

 Her mommy tells her story through her Facebook page. 

https://www.facebook.com/CaylynandAutism

Mailing address:
Jellyfish Wishes
P.O. Box 263
Germantown, Ohio 45327

Gwendolyn Strong *new Jellyfish* 8/17/11

This is Gwendolyn Strong. She is almost 4 years old and is a happy little girl with a

fighting spirit. Gwendolyn was born with Spinal Muscular Atrophy or SMA. SMA is a

neuromuscular disease that eventually impacts every muscle in the body hindering the

ability to walk, sit up unassisted, eat, speak, breathe and swallow. SMA never effects

the mind and Gwendolyn is just like any preschooler in so many ways. 

Gwendolyn

continually shows us how very determined and spirited she is and how much she loves

being part of the world! While she cannot form words, she makes it very clear that she

wants adventure, loves being social with other children, and wants to do all the things

able-bodied children love to do. Gwendolyn proudly just finished her first year of

preschool where her favorite activities were singing with the other children, swinging in

the swings, and playing dress up. Gwendolyn is a girly-girl and has so much fun having

tea parties and putting on make up with her best friend, Hayden, but she is also a daredevil

and has been sledding, jumped in bounce houses, and loves anything that lets her

go fast -- especially driving her purple and silver power wheelchair. Gwendolyn loves

music and princess movies and is currently obsessed with the Wizard of Oz. She has

been to aquariums, museums, zoos, Disneyland and Sea World. She adores animals

and has had special experiences with many, including getting to touch and feed a

penguin, a baby fox, a giraffe and a dolphin and has weekly visits with a miniature horse

named “Little Star.” She has been to several national parks and we took her on a 5,000-

mile cross-country RV journey to meet her 104-year-old great-grandfather and had

family experiences all along the way. SMA doesnʼt make any of this easy and we usually

have to do things a bit differently, but we try as hard as possible to give Gwendolyn the

life that she wants full of rich experiences and surrounded by the love and support of

family and friends. She has been our guide and continually lets us know that SMA isnʼt

going to stop her from living life to the fullest.

 For more information about Gwendolyn

and SMA visit: GwendolynStrong.com and Facebook.com/EndSMA

Mailing address for cards:
Jellyfish Wishes
P.O. Box 263
Germantown, Ohio 45327